I took my second oldest girl, Cassy, to the doctor yesterday for a nasty cough. While we there our doctor took some time to explain Shayla's test results. She said that even though everything came back normal, it would be beneficial for her to have a biopsy. The biopsy would definitively show whether or not she has celiac - and all of her symptoms are pointing to that diagnosis. She is hyper-sensitive to gluten. The doctor is also considering the idea that our 4th, Kyndall, also has celiac since she is so tiny. She's barely grown the last couple of years. The doctor reassured us that Shayla will feel no pain and have no memory of the procedure. She shouldn't even have pain afterward. The biopsy will be taken from her small intestine to see if there is damage consistent with celiac disease. If she doesn't have celiac then we know she is simply gluten intolerant. So, we are somewhat back to square one. We'll wait for the referral to the GI doctor and go from there.
We attended a bbq on Friday night and she was "glutenized". No idea what caused it, but she had a stomach ache within 30 minutes. I am assuming that's to be expected. The only way to prevent it would be to bring her own special plate of food - no fun in that at all!
I finally made it to Whole Foods and found some brown rice flour and xantham gum. That stuff is outrageous! Hopefully I can make more things from scratch now. I am having a lot of trouble coming up with more than a couple of days worth of meals. So, a lot to learn this week.